Showing posts with label guest blog. Show all posts
Showing posts with label guest blog. Show all posts

Sunday, March 27, 2011

Rerun: Guest Blog - The Night I Died


I first ran this in March, 2009 ...

Following is an excerpt from Katy Sara Culling's new book: Dark Clouds Gather: The True Story About Surviving Mood Disorders, Eating Disorders, Attempted Suicide and Self-Harm.

Katy was working on a PhD at Oxford when her brain suddenly quit on her. Her story how she fought back from madness makes compelling reading. Katy now works for Equilibrium - the Bipolar Foundation, a charity based in Oxford. It was through my association with Equilibrium that I met Katy.

Without further ado ...

At 10 PM, clad in pyjamas, all the patients slowly gathered to collect their night meds from the clinic room. I joined the line wearing trainers, socks, purple and black cycling shorts, my bright, luminous yellow cycling jacket, cycling gloves, detachable bike lights, keys (hidden in my pocket) and my purple cycling helmet, strapped securely in place on my head. I had a plan: though not such a good one as to think less obvious clothing might have been sensible. I stood tapping my feet impatiently. I said, “Hi,” to Neil, the nurse handing out the meds, quickly downed the concoction, and then walked to the garden door to leave.

One of the night nurses asked me, “Princess, where are you going?” “Just for a quiet fag on the step, I can’t face the smoking room,” I replied, showing her my lighter and menthols. And she let me go… against Dr. Ogilvie’s orders! And that was how I found myself heading straight for my flat on Iffley Road at about 10: 30 PM on the 13th November 2002: the night I died.

When I arrived home I knew I had to get on with things immediately because at some point I would be missed. I locked and bolted my door, and was grateful that my home address was probably quite hard to find. I pushed my huge antique dressing table across the door – it was so heavy I could hardly move it. I looked for alcohol, but all I had was the bottle of Gordon’s gin I kept for my sister’s visits. I started to swig it neat from the bottle, expecting to hate it, but not actually tasting anything at all. I knelt in front of my tiny attic window, and began to prepare the entire £20 ball of heroin for injection.

Someone missed me: Tony. He called me on my mobile to ask were I was. I told him I was fine and to go away. He asked me if I was going to “do something stupid.” I replied that I was fine, but that I was busy and couldn’t talk. I hung up and ignored my phone. I filled a 5ml syringe with what I knew was a concentrated and lethal dose many times over, and, without pausing or hesitation, pushed the needle into a vein. There were no thoughts about upsetting people I left behind; I could not connect with the world or those I love. I just wanted all the thoughts in my head to stop. So, after checking I was in a vein, I started to push the murky brown heroin solution into my body. I thought I could hear the sound of horses galloping in the distance, quickly getting closer and closer.

I continued to force the lethal mixture into my vein, all of this taking less than 10 seconds. I felt a calm unlike ever before in my life, and pictured horses galloping in the English countryside through the pouring rain. At first they were far away, but their gambolling hooves became louder and louder. Perfectly serene, I waited for their smack against my skull, spilling my life force from within. Then everything went black…

…And I died.

March 27, 2011: This morning I received news that Katy lost her battle with bipolar. I just posted a memoriam on BipolarConnect.

Purchase Dark Clouds Gather From Barnes and Noble

Katy's Website

Thursday, September 24, 2009

Guest Blog - Eternity in an Hour


Another profoundly moving piece from one of my favorite writers of all time, Elizabeth:

One of my favorite people in the world lives in poverty. She rents a tiny house down the street from me, and barely gets by with her social security. The house she lives in is set back from all the others, and was probably originally an out-building behind a main house that burnt down. She’s older and suffers from bad lungs, but she’s raising a four-year-old granddaughter who has more energy and will than I’ve ever seen in one human being. Watching this child on a playground, it’s as if she’s in technicolor and all the other kids are in black and white. As if she’s in fast-forward in a world of slow-motion. She is the issue of one of the children my friend adopted in her younger years, a girl who was severely damaged by her junky-prostitute biological mother, and who is presently, sadly, following a similar path.

This friend of mine is a natural nurturer and masterful gardener. She takes in strays, human and animal. She knows each squirrel and rabbit that frequents her yard, and worries about the fate of the birds as she revels in their beauty. She teaches me a lot. Like for instance, if you get a bee-sting, just smear some mud on it and the pain will disappear immediately. But more importantly, she teaches me to take to heart that old adage, “better to give than to receive.” She walks around with one breast, the other removed for cancer, and half a set of false teeth, the bottom teeth having broken. Medicare won’t replace them for another year. She wouldn’t survive without her oxygen tank and inhaler. Yet she is one of the most radiant people I’ve ever met.

I’m trying to recover from a depression that was so low and long that I can’t even begin to describe it. This friend helps me by just letting me watch her live. The other day, some kids brought her a newborn kitten that was somehow left abandoned by its mother and howling under their porch. It’s about the size of a mouse, it’s eyes still sealed. It has problems feeding from the bottle she got at the pet store, thrashing and yowling as it tries to latch onto the unyielding nipple. It could easily die if my friend wouldn’t persist, but of course she does, and that tiny kitten eventually grasps and drinks and drinks.

This tiny thing feels more essential to me than anything at the moment. It is just born and is being delivered from death by kindness and persistence. Yesterday I held it in my hand, petting it with my finger to simulate a cat-mother’s licking. It writhed and stretched and turned in my palm, and finally let out a long purr. And I thought, wow, this kitten is actually bringing me back to life, healing me. It can teach me so much, something like . . .

Something like this, a gift from William Blake called “Auguries of Innocence.” I’ll give you some of the more pertinent stanzas, although it’s so profound you might want to look it up and read the whole thing.

To see a world in a grain of sand,
And a heaven in a wild flower,

Hold infinity in the palm of your hand,

And eternity in an hour.

. . . . .
Joy and woe are woven fine,
A clothing for the soul divine.

Under every grief and pine

Runs a joy with silken twine.


The babe is more than swaddling bands;

Every farmer understands.

Every tear from every eye

Becomes a babe in eternity;

. . . . .
Every night and every morn

Some to misery are born,

Every morn and every night

Some are born to sweet delight.


Some are born to sweet delight,

Some are born to endless night.


We are led to believe a lie

When we see not thro' the eye,

Which was born in a night to perish in a night,

When the soul slept in beams of light.


God appears, and God is light,

To those poor souls who dwell in night;

But does a human form display

To those who dwell in realms of day.

Thursday, September 17, 2009

Guest Blog: A Knock on the Door


Another gem from Elizabeth:

Wow! Something really amazing happened this morning, as I was starting to write a little piece about empathy and human connection for this blog, as if I know all that much about either. But I’m trying to learn as I try to work toward mental and emotional healing.

But I scratched what I was trying to write when this amazing thing happened, because life gave me such a surprising gift. An adolescent boy, I’d guess about 16, rang my doorbell and presented himself as the cousin of a friend of mine, a 14-year-old boy I call V. This young man at my door, who I don’t know from Adam, said, “My cousin (V.) told me about you and asked me to come over and see if you need any help.”

I said to this young man at my door, “Well, not today, but thank you. Come back another day. I don’t have any money. But I do have this serious weed garden problem you could help me with when I have some.”

He said, “That’s all right, you don’t have to pay me.” He seemed a bit surprised by my presumption that he’d want to get paid.

I said “Thank you, thank you so much. Come back another day because I would have to pay you.”

I came back to my desk in total awe.

V. is motherless child. A few of years ago, his mother was shot and his father put in prison. He doesn’t quite know why, or he’s not saying. Until a couple of months ago, he was living in a house behind me with about twelve relatives. Now he lives in the inner city with his grandmother. Haven’t seen him in a while, and worry about him. He’ll show up again soon, I hope.

Now I don’t know anything about this adolescent who just rang my doorbell, except his connection to V.. but I have a feeling I will. But let me tell you the events that led up to this great blessing of a total stranger coming over to ask me if I need any help. For free.

I teach, so I have summers off. In my neighborhood, kids of all ages congregate at the yard next to mine to play basketball and noodle around all day. Built into the hemlock that dominates my back yard, there’s a ladder to a ledge about five feet off the ground, and a swing hangs from one of the branches. My front porch has a porch swing. So naturally, kids infiltrate my yard and porch.

Sensible people urge me to keep these kids off my property. “If a kid fell out of that tree, you could get sued,” they warn me. Of that little tree ledge, they say, “Tear it down. Legally, it’s what’s called an attractive nuisance.” I know they’re right, but I can’t help feeling that I would just be adding to the sickness of the world if I shooed these kids off my yard. I’m trying to heal my own sickness, and contributing to the insanity around me—in this case, the fear of lawsuits that leaves many of us in a state of paranoia—is just more than I can bring myself to do. At least not on purpose.

A couple of years ago, the neighborhood kids started started knocking at my door. They’d come in in flocks to see my cats and because I’m really bad at names, I just started giving them letter names. Thus the name of this 14-year-old friend of mine, V., who immediately dubbed me Z.

V. and I hit it off right away. He’s amazingly quick-witted and curious, funny and rascally. He started to come over by himself to hang out, look at the pictures on my walls, the weird chotskies and such I have too many of, and listen to music. As I’m writing this, I’m listening to Mozart’s Vespers, one of his favorites. He was fascinated by the food in my kitchen: I don’t eat much American food. He’d pull some mint out of my garden and we’d make tea, maybe play some Monopoly or cards, and I’d usually end up feeding him something and giving him a chore, so I could give him some pocket change. He’d end up buying food to share with his friends with that money.

I have serious depression issues, and some days when he came to my door I’d tell him I wasn’t accepting company. At my lowest, my depressions get so bad I’m afraid to answer the phone and quake at the sound of the mailman for months on end. I isolate. I can’t manage to get out of my bathrobe. I don’t want people to see how badly off I am. I have nothing to say and no way to communicate. No words but words of misery. V. would do his best to pull me out of my funk. “Let’s play Monopoly, Z.,” he’d say. “Let me in. Please?”

People told me, “Don’t let that child in your house. You could be accused of child molestation. He could steal from you.” Sensible people say I should have shut this child out of my life. He’s not your problem, they say. But V. isn’t a problem. He’s a delight. And he has helped me more than I have helped him.

What’s the point of this little story? As a dear friend of mine says, be good to people and the universe will take care of you. And as I’ve started to meditate on that and try to practice it, my view of life has become brighter. And even though life has dealt V. a pretty brutal hand, I hope the universe will take care of him as he tries to make it to manhood in the inner city.

Sometimes it seems that life is all about cruelty and swindle and pain, and the best thing to do is distrust and shut people out. Particularly during periods of depression.

But today, this adolescent boy, a total stranger, showed up at my house. He was sent on a mission by a 14-year-old orphan. He said, need any help? And I know that life is certainly not all about cruelty and swindle and pain.

Tuesday, September 8, 2009

Guest Blog - A Day in the Life of a Bipolar Warrior


Another must-read from Elizabeth:

Three years ago I left a Ph.D program, and since then I’ve been working as an adjunct English instructor at local colleges. This turn in my life occurred for the same reason that most of my major upheavals have: I’m bipolar. I’d gone back to graduate school after a wild, Prozac-induced manic scotched the career I’d been working for a decade or so, ended my marriage, and threw me into a desperate three-and-a-half year custody battle to keep half-custody of my daughter. I persevered, but the experience involved me screaming at the walls many a late night and lots of pleading to a largely indifferent, uninformed justice system and a God Who was apparently busy elsewhere. My therapist couldn’t work with me because her notes were subpoenaed. My psychiatrist committed suicide. Friends abandoned me. Yet I endured somehow, and it was time to start over. I’d always wanted to be an English professor, and was accepted at a local Ph.D program toward that end.

For three semesters, things were going peachily, but then I had another major manic, then a year of severe depression, then another manic, then more severe depression, until I was sitting at my computer for five hours at a time every day in an attempt to write, and coming up with one ill-conceived sentence or two. My mind was so muddy and seeped in fear and guilt and suicidal ideations that I could barely hold a conversation, let alone write a dissertation. I found out that my dissertation adviser was cracking such hilarious jokes as “Elizabeth will be turning in her work. If she takes her meds.” What a punchline!

(Of course, most so-called normal people are led to assume that the psychiatric community has our disorders under control. For some of us, this is really true; for some, somewhat true. Not true at all for me and millions like me.)

After leaving the Ph.D program, I would have gone on disability if I could have, but as I’d been spending the previous ten years studying, working freelance so I could be there for my daughter, teaching part-time, and babysitting, that wasn’t a possibility. No disability for me. No health insurance. Life sucked. I despised myself for falling short and felt sorry for myself for the same reason. The world seemed like a nightmare, and I was terrified. Terrified by the people around me that thought my pain was a really amusing joke or a reason to villify me, or worse, dispense with me. But way more terrified that my mind kept generating horrific scenes of suicide, replaying the disastrous follies of my manics, berating me for the things I could not get myself to do. Terrified of my mind turning what used to be pleasant things—birdsong, tree branches swaying in the breeze—into demonstrations of shrieking, nefarious movements, nightmare.

I had to push that all aside as best I could. I had no choice but to keep going, keep working, and all I can say at this point is thank God. My work as an English instructor has saved me.

My work requires me to get up every morning and do the work. People are depending on me to teach them something worthwhile and to respond to their writing with sensitivity and good advice. I have to do what I can to make these students better writers and readers, and to do that I have to convince them that doing so will improve their chances and their lives. We have essays and short stories to discuss, which deal with the difficulties, complications, and joys of human experience. I have to motivate them to do exactly what I am having so much trouble doing in my own life: reading well, thinking carefully, and writing clearly.

I have a responsibility to these people. Some of them seem totally disaffected, just sitting there in a daze. Some have come from incredibly hard lives and dysfunctional schools. Some are trying to scratch their ways into a second career. It’s my job to try to encourage them to persevere, to spark their interest, to focus their attention. I need to get them to feel comfortable enough to ask questions and interested enough to want to join our discussions and do the work with integrity and hard work.

Something strange happens to me when I enter a classroom. I turn into someone else, or that person I am underneath the depression. For some reason, when I am with my students, my depression disappears, even if I’d been panicking on my drive to get to them, unable to recall what I’d planned to say and do. I manage to focus and come alive once I hit the classroom. If I’m still at a loss, I ask my students what they think and what they don’t understand. I listen carefully and try to respond the best way I know. I find myself having some answers. I find myself cracking jokes. The dire thoughts clear, and my mind regains some of its bounce and focus. Suddenly, I’m O.K.

I don’t know why that is, exactly. The showmanship of teaching can be quite heady, and my students don’t know that I’m coming to them from a life of confusion and despair. They do know, though, that I’m listening as much as talking, and that can mean the world to them. My students’ appreciation that I’m really trying to get concepts through is gratifying. When a young woman coming from a history of twenty ghetto foster homes says, “Wow, I had no idea people thought about things like this!”, I feel I’ve given her something. She certainly deserves it—it’s mind-boggling to me that she’s managed to even get to college, and it puts my life in perspective. Turning a classroom of people into a community is exciting. It’s an ego boost, to be sure. It’s fun. It’s communal. It’s everything I can’t manage without them.

Sometimes one of my students will disappear for a while and come back with a disability form. Bipolar. Depression. Panic attacks. I out myself to these people. I try to convince them to try, at least to continue the course and complete the work through an incomplete. I tell them about my first breakdown, when I was about their age. I say, “We aliens, we have to stick together.” And I hope that makes them feel less alone and better able to deal with it alll.

I’m not saying it’s been easy. For most of these past three years, I’ve gotten up at four or five in the morning so I’ll be over the worst of it—my daily intense three-hour anxiety-attack-mixed-in-with-panic-and-suicidal-ideations—by the time I hit the classroom. Adjunct college instructors (along with pre-school and substitute teachers) are the most poorly paid out there, with no job security and no benefits. But I can scrape together enough to keep a roof over my daughter’s and my own head. Resale shops are fun, and that’s where I get my clothes and even my art and various oddments. I don’t find them demeaning. I find them entertaining and surprising and useful. Whole grains and beans and seasonal vegetables are the best food for me, and they’re cheap. So far my 1999 model Beetle (dubbed “The Evil Clown Car”) is holding up, and when it fails, there’s always the bus.

John writes about tools for dealing with mentally illness that go way beyond the meds: sleeping well (if you can), eating well, talk therapy, support groups, exercise, meditation. My best tools are to force myself to communicate and to do things I believe in, and communicating and doing don’t come easy when I’m depressed. I’m lucky—I have a job where I actually get paid to do both, and a reality where I need to do that job.

Jobs that entail helping other people are out there. They are quite often underpaid, but they pay off handsomely in ways other than money. I don’t think I could have survived these last years if my work had been gauged by the amount of profit I made. I think office politics would have killed me, literally. But I also think that if I’d been able to get disability, that would have killed me also. I don’t think I’ve had it in me these last years to make a meaningful life without other people needing me to do so. Whatever the dynamics that make my job work for me, whether it’s more or less ego boost or more or less altruism (I could, after all, do a crappy, dispirited job and still look O.K. on paper), I do know that my attempts to help other people have been at least part of my saving grace.

Even if you cannot hold down a regular job, or if you need to keep a job that doesn’t exactly make you feel like you’re improving the lot of humanity, seek out ways to be of good use. Volunteer officially, or just listen carefully to other people’s problems and offer understanding and a hug. Help out when you can. If, say, your job is to ring up sales at a gas station, smile and be kind to everybody. Many of your customers will smille and be kind to you in turn. It’s infectious. If you practice empathy toward others, even in the littlest ways, you’ll find yourself stepping out of your own pain. You’ll find yourself feeling connected instead of alienated. All our great spiritual leaders have taught the essential truth that taking good care of others is the essential way to happiness. If you suffer from mental illness, doing for others might just save your life.

Sunday, August 30, 2009

Guest Blog - The God Negotiations: Act I


This masterpiece from Elizabeth:

John McManamy wrote in his book that he has a feeling that he chose his fate before he was knit in the womb, so to speak. That he has a feeling that he was offered options and actually chose to be bipolar in a pre-womb, metaphysical state. This is an idea I’ve had about myself for many years. I told John that we with mental illness should create our own religion. I guess, though, he’s too busy providing people knowledge that could save their lives. Go figure.

So I’ve been thinking about this choosing-your-life idea for some time, and came up with my latest version of me picking my own bipolar life. Let it rip. Here’s the opening scenario:

Act I

Situation: It seems necessary that I have to be born into another planet-earth life once again, and God and I are discussing options. He takes out a file from his rather disorganized cabinet.

He pulls out a form from the file. He says, here’s one you might want to consider. It requires you to have many disorders that are pronounced incurable. Let’s see. Sexual abuse in your teens. Something termed chronic fatigue in your twenties. Then it says fibromyalgia in your thirties. Then a diagnosis of bipolar as you reach 40. Hmmm. Says it should have been diagnosed earlier on that one. Darn, I need a better editor. Need to get rid of that word “should.”

Doesn’t sound so bad, I say. That looks like a breeze. Remember that past life when I lived in a small agrarian New England town that ran a lottery that required us to stone to death one innocent person a year to make the crops grow better? Didn’t work. And those people I had to live with were so boring! Plus all those kids I gave birth to and loved who died in their infancy. Seven dead out of nine!

Look, He says, don’t get snarky. Just be quiet and let me continue. You people who think they can remember past lives are getting on my nerves. You all say you were Cleopatra or Atilla the Hun or some such. Wrong! As for you, you were not in a short story. Believe me, I’ve wiped your memory clean in an ECT contraption. You are getting too imaginative again, so watch it. Here, do this crossword puzzle till you calm down.

Then He leaves me in a cubicle for eight hours with nothing but this crossword puzzle, a pen that doesn’t work, a computer with many, many viruses, a razor blade, a raven feather, and a woman in the next cubicle who keeps blathering about the bras she’s about to order from Victoria’s Secret. I tell you, it seemed like an eternity.

When He comes back, He looks at the blank puzzle and says, what have you been doing all this time?

The pen you gave me was out of ink, I simper. And what’s a six letter word for stupid? Plus, You’re the Expert, so I must ask you. Should I show more or less cleavage?

He ignores this most urgent question, and dismisses my excuses for not completing His assignment. Don’t you know by now that blood is an excellent ink?, He asks. Are you totally out of it?

So let’s get on with it, He says, pulling at his snowy white beard and trying to be kinder. Try to focus. Keep on-point. He says to me. O.K. More on this potential life. Here’s the objective of the life I’m proposing for you. You spend most of your life trying to heal yourself. On this form it says that lots of people termed “assholes” get in your way. Gosh, I really need better editors. Told them many times not to use that word. They just don’t listen.

I say, O.K. God, or gosh if you’d rather be called that, what do you have in mind? All I have to do is cure myself of a few ailments and then I get a mansion in heaven? I hear there are many mansions, some with pool tables in the basement. Any still available? Do they include mineral baths and servants way wiser than I am but whom I can keep in near-poverty and at my service, attendant to my every emotional tizzy, like in the classic Hollywood movies?

He answers, the real estate market here in Heaven is a bit farked up at the present moment. However, I do have an opening for a basement efficiency in a district of Indian computer service providers.

O.K., I say, getting excited. That sounds fine, as long as I get fed decently.

Well, He says, pulling at his long snowy beard and showing deep wrinkles around his eyes—He should really see a plastic surgeon about that—let me review the form. Says here that you can get a junior bacon cheesburger, plus a small fry and a small drink consisting of caffeine, refined sugar, and many artificial ingredients for under $5. Is there anything else that can complete your order?

O.K., I say. Do you mind if I sleep on this decision? I’m feeling a bit woozy.

No problem, He replies. Being that it’s January in Cleveland and a bit chilly, just go downtown. There are some really nice grates on the sidewalks that blow hot air up from hell that you can sleep on. Pretty cozy. Lots of people who talk to me sleep there.

More to come ...

Tuesday, March 3, 2009

Guest Blog - The Night I Died


Following is an excerpt from Katy Sara Culling's new book: Dark Clouds Gather: The True Story About Surviving Mood Disorders, Eating Disorders, Attempted Suicide and Self-Harm.
Katy was working on a PhD at Oxford when her brain suddenly quit on her. Her story how she fought back from madness makes compelling reading. Katy now works for Equilibrium - the Bipolar Foundation, a charity based in Oxford. It was through my association with Equilibrium that I met Katy.

Without further ado ...

At 10 PM, clad in pyjamas, all the patients slowly gathered to collect their night meds from the clinic room. I joined the line wearing trainers, socks, purple and black cycling shorts, my bright, luminous yellow cycling jacket, cycling gloves, detachable bike lights, keys (hidden in my pocket) and my purple cycling helmet, strapped securely in place on my head. I had a plan: though not such a good one as to think less obvious clothing might have been sensible. I stood tapping my feet impatiently. I said, “Hi,” to Neil, the nurse handing out the meds, quickly downed the concoction, and then walked to the garden door to leave.

One of the night nurses asked me, “Princess, where are you going?” “Just for a quiet fag on the step, I can’t face the smoking room,” I replied, showing her my lighter and menthols. And she let me go… against Dr. Ogilvie’s orders! And that was how I found myself heading straight for my flat on Iffley Road at about 10: 30 PM on the 13th November 2002: the night I died.

When I arrived home I knew I had to get on with things immediately because at some point I would be missed. I locked and bolted my door, and was grateful that my home address was probably quite hard to find. I pushed my huge antique dressing table across the door – it was so heavy I could hardly move it. I looked for alcohol, but all I had was the bottle of Gordon’s gin I kept for my sister’s visits. I started to swig it neat from the bottle, expecting to hate it, but not actually tasting anything at all. I knelt in front of my tiny attic window, and began to prepare the entire £20 ball of heroin for injection.

Someone missed me: Tony. He called me on my mobile to ask were I was. I told him I was fine and to go away. He asked me if I was going to “do something stupid.” I replied that I was fine, but that I was busy and couldn’t talk. I hung up and ignored my phone. I filled a 5ml syringe with what I knew was a concentrated and lethal dose many times over, and, without pausing or hesitation, pushed the needle into a vein. There were no thoughts about upsetting people I left behind; I could not connect with the world or those I love. I just wanted all the thoughts in my head to stop. So, after checking I was in a vein, I started to push the murky brown heroin solution into my body. I thought I could hear the sound of horses galloping in the distance, quickly getting closer and closer.

I continued to force the lethal mixture into my vein, all of this taking less than 10 seconds. I felt a calm unlike ever before in my life, and pictured horses galloping in the English countryside through the pouring rain. At first they were far away, but their gambolling hooves became louder and louder. Perfectly serene, I waited for their smack against my skull, spilling my life force from within. Then everything went black…

…And I died.

Purchase Dark Clouds Gather From Barnes and Noble

Katy's Website